SmartTranscript of House Human Services - 2025-04-30 - 9:00 AM

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[Chair Theresa Wood]: Good morning. It is Wednesday, April thirtieth. Welcome to human services. This morning, we are going to, work with Katie to, do some final revisions on h forty six. Yeah. We we have heard, I think, all the testimony that we're going to take on this bill and have some, good suggestions from our partners. So, Katie, can you join us? So the latest draft of this, should be on the on our web page. It's draft one point one. That does not incorporate anything we talked about yesterday. These are all the changes that were made last week. So a couple places I know we're gonna make some changes, Some of the things that came up yesterday when we heard from the health department were that the burden of requiring the health department and the advisory committee to do everything, the powers and what we're asking them to do that without any funding, that they wouldn't be able to absorb that within their existing funding. So a recommendation was made to change shall to may in the lead on language for the their duties, which is [Speaker 1 ]: the page. The advisory council may conduct the following activities? [Chair Theresa Wood]: Yes. So page three, line eleven. And then the other, area, it's in the same area where we talked a little bit about maybe continuing to condense, their duties a little bit. Particularly in that whole all so [Vice Chair Golrang "Rey" Garofano]: personally, the the whole piece about the screening. Yes. Because under that includes you know, equity in the health care system. [Chair Theresa Wood]: I think we're good with one and two under c. And then three, we're we're asking them to kinda conduct, consult with the experts regarding [Speaker 3 ]: to [Chair Theresa Wood]: develop policy recommendations. I think some of that like, for example, a, they told us that they're already kinda doing that Mhmm. Under a screening called newborn screening advisory committee that exists within the health department. Okay. So are we on We're on page four. On top of page two. I was gonna add okay. [Vice Chair Golrang "Rey" Garofano]: Yeah. So we're talking about, having this group provide input on it as [Chair Theresa Wood]: opposed to, right, [Vice Chair Golrang "Rey" Garofano]: input to the other advisory committee? [Speaker 1 ]: With regard to a through e or just regard [Chair Theresa Wood]: to a? Just to a. Okay. So that one would replace a with, like, we don't want them to identify conditions that should be screened because they're already doing that. Right. Same thing. [Speaker 1 ]: I don't that might not work with [Speaker 4 ]: the human language. Existing conditions. [Chair Theresa Wood]: I think it's they work. I mean, the lead in language says to [Speaker 4 ]: consult and block it. Right? That's that's that's good. [Vice Chair Golrang "Rey" Garofano]: Yeah. So it might be to identify conditions to recommend for screening to the name of the other group. [Chair Theresa Wood]: Mhmm. Oh, that's good. Yeah. [Vice Chair Golrang "Rey" Garofano]: Because the lead in is consult with experts on rare diseases to develop policy recommendations that that so a would be that identify conditions to recommend to the name of other group for inclusion in the screening. Yeah. I like that one too. I think b still worked since it's advised, but but but eliminate c. Yes. [Chair Theresa Wood]: Is this in the loop? No. That's right there. Screening advisory committee. [Speaker 3 ]: It's still there. [Speaker 1 ]: That's the program screening advisory committee. Advisory committee. Thank you. Thank you. [Chair Theresa Wood]: Okay. Got it. And then b, we would leave. C, we would eliminate completely. Okay. [Vice Chair Golrang "Rey" Garofano]: C, I think, we would believe. Well, maybe drop and improve programs such as because that kind of ties into a. We that's going back to the newborn screening program. [Ann B. Donahue]: Yeah. Drop the [Speaker 4 ]: Are they gonna improve relevant diagnostic services? Yeah. Well, they're not. [Chair Theresa Wood]: Yeah. No. [Speaker 3 ]: They can't they can't because they're not They're advising. [Speaker 4 ]: They're yeah. [Vice Chair Golrang "Rey" Garofano]: Well, everything is under I mean, number three is all about consulting with the expert consulting with, but, yeah, maybe these should be struck. [Speaker 4 ]: Whereas I mean, are diagnostic services something they should be looking at? Like [Speaker 6 ]: Well, because that could also just be you know, sometimes, like, it may not even be medically, but, like, working with people with rare diseases, you know, procedures. [Vice Chair Golrang "Rey" Garofano]: To combine with e there? Because it's timely access and Oh, that's a good for diagnostic and treatment services. [Speaker 4 ]: Yep. Ensure timely access to treatment and relevant diagnostic services. [Speaker 3 ]: How does it that seems to type an act to be where we talk about Oh, they information access. [Chair Theresa Wood]: Oh, yeah. I mean, how would they ensure timely access as advisory committee? Well, no. But but these are [Vice Chair Golrang "Rey" Garofano]: same parts to the intro language in of number three there. It's all about something with experts. They're consulting to develop recommendations that would improve. They're not They would improve for me. [Speaker 4 ]: They're not gonna actually [Vice Chair Golrang "Rey" Garofano]: do that. [Speaker 3 ]: Yeah. It seems to me that b, g, and e are all sort of the same. [Speaker 1 ]: Yeah. You [Speaker 3 ]: roll them to one. [Vice Chair Golrang "Rey" Garofano]: Yeah. I think you're right. B, d, and e, really. Improve timely patient access, then you get the timely in. [Speaker 4 ]: That was a diagnostic services. [Vice Chair Golrang "Rey" Garofano]: Access to [Chair Theresa Wood]: access to quality. You combine those three? B, d, and need to. [Vice Chair Golrang "Rey" Garofano]: We're not including anything about the newborn screening program from b because that's in a combined version. Okay. [Ann B. Donahue]: Now because the health department is doing this, will they have a chance [Chair Theresa Wood]: to look over and see [Ann B. Donahue]: if they like the new wording? [Chair Theresa Wood]: Send them the new draft. Okay. [Vice Chair Golrang "Rey" Garofano]: And they'll still be able [Chair Theresa Wood]: to put input? Yes. Of course. [Vice Chair Golrang "Rey" Garofano]: This is and this is based on your input. But what about change from changing changing improve, which some people thought was too strong, support timely patient access. In other words, they're providing they're providing recommendations that would support timely. Yeah. Mhmm. [Speaker 4 ]: Four is fine. [Vice Chair Golrang "Rey" Garofano]: Four is fine. Yeah. The Department of Health said that which Yeah. [Speaker 3 ]: Yeah. [Chair Theresa Wood]: They're good with that. Be able to do that. Five is fine. [Vice Chair Golrang "Rey" Garofano]: Yep. B [Speaker 4 ]: is good. [Chair Theresa Wood]: They were fine with that. [Vice Chair Golrang "Rey" Garofano]: E is good. May. E is May. Right? Yeah. Well, yeah, it's not just yeah. May may [Speaker 4 ]: say May. May say May. Recommendations. Yep. [Speaker 3 ]: Yeah. [Chair Theresa Wood]: They were final quarterly. Mhmm. [Vice Chair Golrang "Rey" Garofano]: Yeah. I think the rest [Chair Theresa Wood]: The rest is good. Yeah. [Ann B. Donahue]: Oh, did we get a fiscal note? Yeah. There's no [Chair Theresa Wood]: financial implications. [Vice Chair Golrang "Rey" Garofano]: Well, there there will be a fiscal note on the on the Skype doc. [Chair Theresa Wood]: I heard that gonna be about ten thousand. [Vice Chair Golrang "Rey" Garofano]: Well, remember, Teresa said fiscal the fiscal committee does the fiscal note when the bill is finished [Speaker 3 ]: Okay. [Vice Chair Golrang "Rey" Garofano]: If not beforehand. [Ann B. Donahue]: Okay. Because I've been told it's gonna be around ten k. [Vice Chair Golrang "Rey" Garofano]: Well, the this one will probably be less than that, but we'll see. Good. Because it's only four meetings. You know, the the general lesson [Chair Theresa Wood]: Oh, and before it was twelve. Monthly and Thank you, Anne. Etcetera. [Speaker 3 ]: Small stipend for a limited number of people. I'm like [Speaker 4 ]: There's only [Speaker 3 ]: a group [Speaker 4 ]: of people there. Three? [Vice Chair Golrang "Rey" Garofano]: There's only a good private. Yeah. [Chair Theresa Wood]: There's not that many. [Speaker 4 ]: Right. That would be that wouldn't be eligible for a stipend. Right. [Speaker 6 ]: There's three. Two [Chair Theresa Wood]: Regularly. And that. Yeah. Three is minimum. [Vice Chair Golrang "Rey" Garofano]: Three people for four meetings is Yeah. [Chair Theresa Wood]: Fifty bucks a week. [Vice Chair Golrang "Rey" Garofano]: That math. [Speaker 1 ]: Yeah. No. I had [Vice Chair Golrang "Rey" Garofano]: a few times, four times three. Anybody quick? I was I was I [Chair Theresa Wood]: was thinking of three twelve. [Ann B. Donahue]: Yeah. I wasn't thinking of the quarterly. So it should be a quarter of ten k. [Speaker 3 ]: Actually, yeah, it'll be even less. [Vice Chair Golrang "Rey" Garofano]: Yeah. But it's even less than that because there's only three three people eligible for stipend. So Oh. Larger. Larger. Yeah. Yeah. It's even less. Okay. So [Ann B. Donahue]: All of that. I think those [Chair Theresa Wood]: are all the changes that we heard from the health department. Mhmm. Somebody have any other fast thoughts on any edits for Katie? [Vice Chair Golrang "Rey" Garofano]: You need to cover. [Chair Theresa Wood]: I think that's good. He should. It [Speaker 3 ]: didn't change anything on our findings, I don't think. But [Vice Chair Golrang "Rey" Garofano]: No. And and that was something the department of health said in terms of the intent there, [Chair Theresa Wood]: like very supportive of that. Yeah. Board. [Speaker 3 ]: So I don't [Vice Chair Golrang "Rey" Garofano]: think they have any issue with that. [Chair Theresa Wood]: Great. So, Katie, whenever you can have a new It's easy. Yeah. That was. [Speaker 1 ]: And do you have it on your agenda again? [Chair Theresa Wood]: We don't. Yeah. Okay. Which one? Whenever we have a Yeah. [Vice Chair Golrang "Rey" Garofano]: Empty spot and and a ready [Speaker 3 ]: and a ready and a ready and a ready and a ready [Chair Theresa Wood]: and a ready got a light. Okay. Mhmm. So Okay. Great. Thank you. Yeah. [Vice Chair Golrang "Rey" Garofano]: Whatever you think of it. Okay. [Chair Theresa Wood]: Sounds good. [Vice Chair Golrang "Rey" Garofano]: Thank you, Kim. [Speaker 1 ]: You're welcome. [Chair Theresa Wood]: Okay. So if we can go off live, our next yes. Hold on. Let me,
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